If you have been following my Living With Interstitial Cystitis blog series, you know that last year, I was diagnosed with Interstitial Cystitis, IC, and Pelvic Floor Dysfunction. You can learn more about Interstitial Cystitis with my prior blog posts ("My Personal Experience with IC" and "IC and Your Diet").
Due to the nature of this condition, many of us who have been diagnosed with IC can go through many emotions, including depression, anger, denial, grief, and a sense of overall isolation at times - as though no one else knows what we're going through. I can tell you firsthand that all of these feelings are perfectly normal to have, especially when dealing with a painful and personal condition such as Interstitial Cystitis. But I also know how helpful it can be when you start to reach out and talk with others who can relate to the feelings and issues you're experiencing.
Here are some great support options for you to begin exploring. Some of these are simply resources that you can use for your own education, others are various support groups and forums where you can connect with others. Feel free to share your own resources or links to blogs that you have found helpful in your own journey with Interstitial Cystitis.
Social Media Resources & ConnectionsYouTube
Interstitial Cystitis Network's YouTube Channel, run by Jill Osborne
Understanding Interstitial Cystitis/Painful Bladder Syndrome
Interstitial Cystitis Association (ichelp.org)
Interstitial Cystitis: Living with IC Support Group
Interstitial Cystitis Network
My Invisible IC - Closed Group
Interstitial Cystitis Network
Life Beyond IC
Healthy IC Recipes
IC Today News
IC Dietitian, Julie Beyer (founder of ic-diet.com)
Interstitial Cystitis Association (www.ichelp.org)
Interstitial Cystitis Network (www.ic-network.com)
Healing Interstitial Cystitis (www.healingic.com)
Interstitial Cystitis Association - Diet Information
My Food Style
Interstitial Cystitis Recipes Facebook Group
Cooking for Interstitial Cystitis
Support Groups & Forums
Interstitial Cystitis Association List of Local/State Support Groups
Daily Strength Interstitial Cystitis Support Group
IC Network Support Center
IC Network 24/7 Support Forum
Global Support Groups/Website listing from IPBF
Pain Connection Support Groups
Other Helpful Links & Websites to Explore
Voices of Hope Blog (Stories of hope, encouragement and success from the IC community)Public Restroom & Travel Tips (ichelp.org)
Fitness & IC (ichelp.org)
The Echenberg Institute for Pelvic & Sexual Pain
Urologic Chronic Pelvic Pain Syndrome (UCPPS) Society
International Painful Bladder Foundation
Feel free to also explore our blog from the past in regards to Interstitial Cystitis and other bladder health-related topics.
If you have begun to use catheters as a related aid to your condition, you can turn to 180 Medical for a listening ear and professional, top-class service during this difficult time. We have a wide selection from all of the top catheter manufacturers. Contact one of our highly-trained, friendly specialists today, and we’ll be glad to help you find the right catheter for your needs.
About the Author:
Trish has worked for 180 Medical for four years as the Nebraska Office Coordinator. She lives in Nebraska with her husband and daughters.