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Interstitial Cystitis Resources & Connections

Interstitial Cystitis Resources & Connections

interstitial cystitis resources
Last year, I was diagnosed with interstitial cystitis (IC), which is also known as bladder pain syndrome (BPS). Plus, I have pelvic floor dysfunction. I’ve talked some about my personal experience with interstitial cystitis on the 180 Medical blog so far as well as some tips for a diet when living with interstitial cystitis. Today, however, I’d like to share some of the top interstitial cystitis resources that have helped me. I hope they can help you too.

Needing Support for Living with IC

Due to the nature of this condition, many of us living with interstitial cystitis can go through many emotions, including depression, anger, denial, grief, and a sense of overall isolation at times. We may also feel like no one else out there knows what we’re going through. However, I can tell you firsthand that all these feelings are perfectly normal to have, especially when dealing with a personal and painful bladder condition.

Of course, now I also know how helpful it can be to find support. It’s a life-changer when you can talk with others who relate to the feelings and issues you’re experiencing.

Here are some great resources and support options for you to begin exploring. Some of these are simply resources that you can use for your own education while other links I provide are some online interstitial cystitis support groups and forums.

Interstitial Cystitis Resources on Social Media

From online forums and private groups to helpful educational videos about bladder pain syndrome, here are a few of my favorite online resources through social media.

YouTube

Interstitial Cystitis Network’s YouTube (run by Jill Osborne)

Understanding Interstitial Cystitis/Painful Bladder Syndrome

Facebook

Interstitial Cystitis Association (ichelp.org)

Living with IC Support Group

The Interstitial Cystitis Network

My Invisible IC – Private Facebook Group

Twitter

Interstitial Cystitis Network

IC Association

Bladder Support

Life Beyond IC

Healthy IC Recipes

IC Today News

IC Dietitian, Julie Beyer (founder of ic-diet.com)

Interstitial Cystitis Diet

Interstitial Cystitis Association – Diet Information

My Food Style

Interstitial Cystitis Recipes Facebook Group

Other Online IC Support Groups and Forums

Interstitial Cystitis Association List of Local/State Support Groups

Daily Strength Interstitial Cystitis Support Group

IC Network Support Center

IC Network 24/7 Support Forum


Global Support Groups/Website listing
from IPBF

Pain Connection Support Groups

More Helpful Links, Books, and Websites to Explore

Voices of Hope Blog (Stories of hope, encouragement and success from the IC community)

Public Restroom and Travel Tips (ichelp.org)

Fitness and Interstitial Cystitis IC (ichelp.org)

The Echenberg Institute for Pelvic and Sexual Pain

Urologic Chronic Pelvic Pain Syndrome (UCPPS) Society

International Painful Bladder Foundation

Where to Get Catheters for Interstitial Cystitis

Part of providing helpful resources includes medical supply providers. If you need to start using catheters to help manage your bladder condition, you can turn to 180 Medical, one of the leading providers of intermittent catheters in America today.

180 Medical’s specialists offer a listening ear, a caring heart, and professional top-class service. Plus, they offer a wide selection of intermittent catheters from the top catheter brands and manufacturers.

From comfortable female catheters to travel catheters options that stay discreet, 180 Medical offers it all. Not sure what your health insurance plan will cover? That’s ok because 180 Medical has insurance experts on staff who can verify your coverage and walk you through your options.

Contact one of our highly-trained, friendly specialists today, and we’ll be glad to help you find the right catheter for your needs.

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About the Author
Trish Eklund has worked as an Office Coordinator for 180 Medical for 8 years. When she is not at work, she enjoys writing, photography, reading, and spending time with her family.

(Photo by Don Shepard)